Marconi (8) suffers from severe subvalvular and valvular pulmonic stenosis – a condition where lesions in the heart valves disrupt the blood flow. He is also epileptic.

In the past few years, Marconi has been admitted to the hospital six times – the last time for more than 3 weeks. 

Marconi lives with his mother, his father and his 10-year-old brother in a town near Port-au-Prince, Haiti.